All Health Care Providers Welcome to PIDDSA
What is PIDDSA?
Primary Immunodeficiency Diseases South Africa, an active Working Group of ALLSA.
What does PIDDSA do?
The main aim is to promote Primary Immunodeficiency (PID) awareness and education and to network with health professionals interested in PID within Southern Africa. To achieve this, a working group partnership with ALLSA was established for PIDDSA.
What has PIDDSA achieved so far?
Every ALLSA Congress has offered a PID session or talk since 2006. With the support of ALLSA, PIDDSA also co-hosted the first English speaking ASID (African Society for Immunodeficiency ) Congress in Sun City in 2013. PIDDSA organizes PID Schools and has also supported an African A Project PID workshop in 2014 in Lusaka, Zambia. The PID123 cartoon series and dedicated PID articles for the ALLSA journal were initiated in 2015 to help readers get into the topic of genetic immunodeficiency diseases.
What does PIDDSA need?
The current informal core group of individuals needs the support of active members to assist with guidelines, webpage design and population, workshop and congress organization. To this end PIDDSA circulated a questionnaire list of iServe and iOffer at ALLSA Congress 2014 in Durban, where some of you listed your names and services relevant to PID. We need the continued commitment of these and other interested individuals to do the work that lies ahead with the many diagnostic, treatment and health challenges ahead for PID in SA.
Please diarize the below meetings for other opportunities to learn more about PID :
ICORD Conference 19-22 October at Spier – International Conference on Rare Diseases and Orphan Drugs, where PID, Rheumatology etc will feature http://www.rarex.co.za
ESID Congress 21-24 September in Barcelona – European Society for Immunodeficiency Diseases http://www.esid.org
ASID Congress 12-14 April 2017 in Livingstone – African Society for Immunodeficiencies
LASID Congress 04-07 October 2017 in Sao Paolo – Latin American Society for Immunodeficiencies http://www.lasid.org
USEFUL READING :
Jeffery Modell Foundation - your online resource center for Primary Immunodeficiencies (PI). http://primaryimmune.org
Primary Immune Deficiency Foundation Educational Material Meet us at the upcoming ALLSA Congress 2016 and come to the “PIDDSA workshop “ for exciting talks on genetic diagnostic for PID and Illustrative case discussions.
We look forward to see you there !
Monika Esser (Chair)
Andre van Niekerk (Treasurer and ALLSA liaison), Jonny Peter (Guidelines)